The Muscular Dystrophy Campaign provide information and support through their website and helpline (0800 652 6352), they have a link with the Joseph Patrick Trust to provide equipment grants and they also facilitate a befriending service called MD Links; allowing you to phone or e-mail someone else in the local region who has the same condition.
Other national charities that deal with types of muscular dystrophy include Struggle against Mascular Dystrophy, Becker United and Action Duchenne.